MS Creates Challenges
I like to think that I am going to beat ms. I know that is wishful thinking on my part. No one has ever beat ms if they really have ms. However, all of us can do everything we can to live in spite of ms.
These words are as true today as the first time I heard something similar, 13 years ago. However, 13 years ago, there were 3 experimental drugs to help fight the symptoms of ms. Notice, that does not say cure or end. It says fight the symptoms. There is no cure for multiple sclerosis today. However, there are drugs that are helping reverse some of the damage to the nerves caused by ms. There is hope today.
One of the things ms has taught me is that sometimes, I need your help. I am not able to stand alone and fight this disease. Some days, I can not even stand up! Other days, I can stand, walk, talk, and appear normal.
I was told some years back that a person’s co-worker was faking symptoms of ms. This co-worker was using a wheelchair to go to work in the mornings. That is not an easy way to get to work. Each evening, that co-worker carried the wheelchair out the door to their car. This person telling me this was convinced that because the co-worker did not need help going home, they must be faking in the morning. Unfortunately, that is ms. We do not always need help, and sometimes, the disease affects us at different times of day.
I cleaned the swimming pool a few weeks ago. That was over-doing it for me. For three or four days, I walked crooked. I had a limp, and could hardly use my arm to pick up a cup of coffee. But I knew why. Each time I decide to do something, I have to ask myself what it is worth to me. If the price is too high, I do not do it. I knew cleaning the pool would hurt me. I was hoping it would not mean grabbing a cane for a few days.
Each one of us with this disease must decide what each day is worth. To me, it is worth living fully. I no longer work, so I can stay home and enjoy the family I live with. I can live on my own today, but I could not do that 5 years ago. I needed help all the time. Even today, if I try to do what normal people do in a day, I fail. I do not have the strength to do it. However, I can watch the grandchildren for an hour or so. The joy from that hour or two is worth the penalty I pay each time.
Everyone has challenges. I know what is causing some of mine. It just makes it a little bit easier sometimes. It also makes it a little bit frustrating sometimes.
Links to information:
What Is MS?
My Own Disease
All I Have Is Multiple Sclerosis
I Can Walk